It is my pleasure to present to you the first bilingual (English/French) site entirely dedicated to Myotonic Dystrophy (Steinert Disease).
After working on this disease for over 20 years, I have decided to develop a website in order to:
- Offer information about the disease, the current state of research, associations and support groups that are available to patients and their families as well as the opportunity to exchange information with people suffering from this disease and to direct any medical questions to a specialized team.
- Offer a unique portal for researchers giving them access to an international registry of available human research material.
The goal of this website is to encourage greater interaction and exchanges between people living with the disease, their families, doctors, scientists and volunteer workers. By working together, I believe that we can contribute to better care for patients and help in the daily fight against isolation and exclusion to promote a better quality of life.
Dr Jack Puymirat.
NEWS
Summary of the congress of IDMC-8
The 8th meeting of the international consortium
on myotonique dystrophy (IDMC-8) been held in Tampa (Florida) from November 30th till December 4th, 2011.
Where are the researches on the development of a treatment for myotonic dystrophy type 1 ?
